Update for past 7 months

So much happened the past 7 months. I was first admitted to Steve Beko Academic Hosp (SBAH) in March 09, after that I was there 3 more times for "work-up".

The beginning of May 09 I was admitted for two test, one of them going to theatre for a test. The other is a test with catheters etc. I was admitted on the Monday for the catheter test and when I was already on the bed and preped for the test the dr said he is not going to do the test now it is too late and he is not doing it. That was only 14:00. Needless to say that I was furious so furious that I started to cry and then I get more upset because I don't like to cry infront of people and therefor cried more ....... and ... repeating the circle. I eventually calm down and prepared myself for theatre the next day, going nil per mouth from 22:00 because I am going in at about 09:00. 10:00 came 12:00 came and at 14:00 the dr came to me to tell me that the theatre is full and they will not be able to take me, my theatre must be rescheduled. That was it I had a trully tantrum and did not want to talk to anybody. At that stage a Social Worker came to me telling me that I must calm down. I must "correct my relationship with my God" then I will be able to handle issues like this better. Have you ever seen petrol into fire? I went of like a cheap cracker and told her not to talk to me, I do not want to talk to her, my "relationship with my God" is exellent and there is nothing wrong. She do not know me so don't speak to me. She left and I went home.

Beginning of June 09 I was admitted again to SBAH, ward 4.6, Nephrology for the theatre test that was cancelled in May 09. I went to theatre and after that went home. And that was the last that I heard from the ward.

I followed up with the ward sister on my report that the dr must compile that must go to 1 Mil Hosp (dr Ledwaba). Twice a week I phoned just to get the same answer "The file is on the counter and the dr did not get to sit and get all the tests from the system and to compile a report for 1 Mil Hosp.

In October 2009 myself and 3 friends went on a 4 week holiday to Mosambique swimming with the dolphines and just doing everything and anything we want to do. On my return I phoned the ward again and again got the same answer. It has been nearly 6 months that I last saw any dr and I was beginning to panic, so I phoned dr Ledwaba at 1 Mil Hosp. She was under the impression that I was still under the treatment of SBAH so she requested all the bloods and urine necessary and I went to see her. (Hey do I miss my sister here in Pretoria, she is always the calm one and telling me do this and do that) Gerna is now in Potchefstroom and she still provided me with advice. Thanks Sis, I love you.

When I got to dr Ledwaba she was not happy to see me, she said she meant that I must get the tests and phone her for results. She phoned ward 4.6 and spoke to Sr Nthlatleng asking her to keep in touch with the patients from 1 Mil Hosp even if it is only to tell them that everything is still ok and not to leave them hanging. Apparantly it happen a lot with the military patients.

And what happened on Friday 20 Nov 09 (would have been mom's birthday) a sister from ward 4.6 phoned and tell me to be admitted again on Monday for the outstanding tests and for Prof Potgieter to see me and deside what now.

On Monday I was there and all went well. I started with my 3 bottles of 24 hour creatinine clearance. The first one in May 09 was 38, and the first one on Monday went down to 33. But the third one went totally down to 23.6. I caught a fright but the third one was not so bad (says the dr, I don't know the reading) but I am still in Stage 3. I started on Wednesday (still in hosp) with pain on my right side over my kidney area. The pain was bad and the Prof says he think I am bleeding in one of my cysts. Now I must be back on Sonday 29 Nov 09 for scans and sonars next week. I also had to see the social worker and guess what who walk in the same one who gave me the "talk"the last time. And what did she do today after I waited for her for 2 days to see me. She sat down to do the report with me, she asked me a question and while I am explaining to her she fell asleep. She woke up and said she is going now because she is tired she will see me next week when I am back in hosp. And she left. How bizarre is that.

The people in my office I think is not so happy with me because not one of them phoned me the hole week. I think it will be even worst because I will not be at work on Monday. i let them know but I did not get an answer back.

I had a lot of support from my friends in Pretoria this past week. They kept on phoning asking and supporting me. They are Anette Burger, Beverly Roos and Riana van der Westhuizen.

But very special thank you to my best friend Linda du Preez, you are a true friend and I know if I don't hear from you and I get an sms it is because you don't know what to say and I understand.

My darling sister who have her own issues (she was diagnosed with breast cancer 5 weeks ago and must go for mastektomy (breast removal) and chemo)for always being there and talking to me.

My other sister (sister in law) Corne you are also a great support for me and I want to say thank you for being there and that I could know if I call you will be there. I am going to miss you if you go to Mosambique permanently. Then my brother, Barry, the one who do not say much but is always there for me, thank you. You are already in Mosambique but I got sms's from you regularly Thank you.

And then my God who is always there with me, carrying me and showing me the correct way to go. All the Glory to Him.

I am in my own bed tonight and I love it. I will try and keep up to date with what happens.

See u soon.